Whew, lots to report and unfortunately a lot of it is bad. As you probably know, Colby had not been feeling himself the last few days. Well, Monday night I woke him up around 1:30 a.m. to do a cough treatment. Took him off his bi-pap and BAM, his oxygen dropped. I couldn't get him stabilized and I could hear that he was unable to breathe. It was serious. I had no choice but to call 911. They took us to Kosair Hospital and let me say, again, HOW VERY MUCH I HATE THAT HOSPITAL. They may be awesome at treating kids with cancer, kidney disease or some other ailment, but they ain't worth 2 flying farts at treating SMA kiddos. By the time we got to the ER things were looking not so good. Colby's heart rate was dropping and they had to act quickly. They put an IV in his foot, which blew. So they put in IV access called IO where they run it into your bone. WTH?! I had never heard of that before. Then he had to be intubated. The chick from anesthesia was doing it so I thought we would be in good shape. She tried once and was unsuccessful, then was successful on the 2nd attempt. She was also successful in knocking out Colby's left top front tooth, which I am now carrying around in a little jar in my purse. You see how this is going, huh? We got up to the PICU around 4:00 I guess. I had Chris, Mom, Kenny and Dad with me. Sent Chris home to get me a few things I would need. Yeah, nothing like sending your ex-husband to go through your toiletries and underwear drawer. I immediately called Cincinnati Children's and requested a transport. Colby experienced other problems while at Kosair, too. He had a central line placed incorrectly. Then another doctor tried and tried to place a femoral line, unsuccessfully, wasting over 2 hours of time messing with it. Cincinnati's transport team was there waiting to take us. Then they called in their IV team and poof, they inserted 2 IV's within about 3 minutes. I could have choked those assholes. This kid is full of holes where they tried to get IV access for him. Plus, they also had to give him 5 shots as an antidote when his IV blew out the med they gave him. I quit counting the holes at #26. That's at least how many time my sweet Colby boy has been poked and prodded. Makes me just want to SCREAM!!!
But things are turning around now. We are at Cincy. Got here yesterday around 4:00 I think. We've seen lots of smiling, familiar faces of docs, nurses, RTs (resp. therapists) etc. Our favorite RT just happens to be Colby's today (coincidence I think not haha.) We just got back from getting his PICC line inserted so no more poking for IV access! Yippee! The procedure was a breeze. They set up a DVD for him to watch and he didn't even get through 1 Spongebob episode and they were done. They are doing cough treatments every 3 hours through the day and every 4 hours through the night. They'll start his feeds today. Poor boy has to be starving. He's only had fluids since getting in the hospital! I also had them increase his pain meds for a while since he's had such a rough go the last 2 days. From here on out he's going to get better and stronger every day, then we're blow this pop stand.
We've gotten so many calls, texts, prayers, get well wishes. THANK YOU ALL SO MUCH. It means a lot to me that you're thinking of Colby, my family and me. Keep sending those warm and fuzzy get well vibes and let's get this kid home and back to school. I'll update when I can.
